Update: Tied House has emailed me to let me know we raised over $1300 in the Lupulin for Lupus fundrasier! Thank you to everyone who helped make this a success. I’ll link back to the event recap post soon!
What initially started off as a half-joke, half-knee-jerk reaction to a failed collaborative blog post has been refined into something very personal, real and set to go. Tied House Brewery & Cafe has been kind enough to work with BetterBeerBlog to help us put my Lupulin for Lupus “Pint Night” Fundraiser. This page is to be a “living document” of sorts. As some details become more concrete, the changes will be reflected on this page. So please bookmark this page for your reference. Details below:
Who: Tied House Brewing Company
What: Lupulin for Lupus
Where: 954 Villa Street, Mountain View, CA 94041 map
When: Friday, October 1, 2010 @ 5pm
Cost: No cost to go, just pay for the beers that support the fundraiser.
What is Lupus?
Systemic lupus erythematosus, better known as lupus, is a chronic, autoimmune disease. In the most simple of terms, people with lupus have bodies that attack itself. These attacks, or flares, can happen to any part of their bodies at any time. Some of the more common organs attacked include: the heart, joints, skin, lungs, blood vessels, liver, kidneys and the nervous system. Lupus is also known as “the great imitator” as symptoms of the disease are often mistaken for other diseases. It is sometimes known as “the invisible illness”, many people who suffer from lupus appear as if nothing is wrong on the outside but are suffering greatly within.
Lupus can be fatal. Although, with the proper diagnosis, the disease is highly treatable. Despite this, lupus has no cure. Many of the treatments today are focused on reducing flares as well as treating the individual symptoms.
No one knows for sure what causes lupus but there are several factors that contribute to it’s development: genetics, environmental triggers and reaction to drugs. Lupus is non-communicable, which means that it’s not contagious.
What is Lupulin?
Lupulin is the name of the glands within hops that produce a resin that contains the essential alpha acids and essential oils that contribute hop bitterness, flavor and aroma to beers. I thought that since “lupu” is in “lupulin” and “lupus”, it would be great to combine both for the fundraiser. Kinda cheesy, I know, but it is the most appropriate for what I’m doing and what I’m doing it for.
What is the fundraiser?
The fundraiser is incredibly simple: buy a beer and help the cause. Tied House holds a regular “First Friday Firkin” in which they tap a cask of real ale on the first Friday of every month. I asked if we could co-opt this event with our fundraiser and they said yes! We’re not asking anyone to do something they wouldn’t already be doing while at the Tied House. Just buy a pint of the beer in the firkin and you’ll be doing your part to help find a cure for lupus. All proceeds will benefit the Lupus Foundation of America. If you don’t want to wait until the fundraiser to donate, you can do so directly to the Lupus Foundation of America by clicking here.
Who is Karen?
Karen is the key, she is the inspiration and the reason I am doing this. Karen is a close friend of the BetterBeerBlog family. I’ve actually known her since she was 5, maybe 6 years old and she also happens to be Mrs. BetterBeerBlog’s BFF (best friend forever, in case you weren’t sure.) Karen is also living with lupus. But she isn’t the only one. This fundraiser is for her and for everyone else living with lupus.
Read more about Karen’s story in her own words at her Lupus Foundation of AmericaPage of Hope.
In this section, I will be listing the names of individuals and businesses who will be donating their time, money and efforts in helping to set up this fundraiser. The best way to help me out would be to show up the night of the fundraiser and buy a pint of beer. But if you would like to help further, please email me at betterbeerblog[at]gmail[dot]com and we can discuss what you have in mind.
It is through the generosity and kindness of our local businesses that this fundraiser can take place. The people and businesses listed here have graciously donated gifts, time and/or their services to help make this fundraiser even better than we had originally imagined. Please take the time to read about them and, most importantly, show your support by paying their places of business a visit.
|Wine Affairs / 1435 The Alameda, San Jose, CA / 408-977-0111
Wine Affairs is a high-quality wine bar and retail store. Customers can open any bottle in the store with $15 service fee. We also encourage customers to sample any of our 50 wines by the glass. Or, try one of our wine flight adventures to taste several wines side-by-side. Our mission is to take the guess work out of buying wine. Please visit our website athttp://www.thewineaffairs.com
|Family Eye Care, Dr. Dao & Associates, Inc. / 451 South Airport Boulevard, South San Francisco, CA 94080 (inside Costco) / 650-589-3128|
|NetCal Consulting, Inc. /2005 De La Cruz Blvd. Ste 142 Santa Clara, CA 95050 / 408-228-4488
NetCal is not your average IT Consulting and IT Support Services company. We pride ourselves on being the best IT resource for our clients. The combination of our extensive technical skill set, effective project management capabilities, professionalism, and more than 30 years of real-world experience allows us to provide the best IT Consulting services for our clients. Our consultants believe that IT is an enabler and supporter of business processes. This means we strive to make technology work effectively and efficiently so you can concentrate on your business.
|California Café / 700 Welch Rd Palo Alto, CA 94304 / 650-325-2233
Located in the charming and historic Stanford Barn, Palo Alto’s California Cafe is warm and inviting for both everyday dining and special occasions. Our covered patio is the perfect dining destination for those beautiful California days.
Sit back, relax and savor!
|Beer & Winemakers of America / 755 E. Brokaw Rd. San Jose, CA 95112 / 408-441-0880
Serving the fermentation community since 1975, Beer & Winemakers of America maintains a very large and complete inventory of quality products to support your hobby. If you have never made beer or wine we have a complete start up kit. We offer a large selection of ingredient packages for many different styles of beer. For the advanced hobbyist we stock a diverse selection of grains, White Labs liquid yeasts, and many hop varieties including some you have probably never heard of. For mead makers we stock an excellent blend of yeast nutrients and yeasts for making top quality meads. In season I supply premium varietal grapes from some of the best vineyards in California. When you pick up the grapes we will process them with our professional stainless steel stirring destemmer and must pump.
|WedShare.com - Personal Wedding Websites & Planning Tools / 408-404-5225
When you create your own personal wedding website with WedShare.com, you take advantage of the most comprehensive, complete wedding website and planning tools package available. Every WedShare membership comes packed with unique and fun features, including many that you won’t find anywhere else. Get all of our premium features at one flat membership price–without any upgrade costs or hidden fees–plus enjoy new features that are added all the time!
|The Old Spaghetti Factory/ 51 N. San Pedro, San Jose, CA 95110 / 408.288.7488
For more than a generation, families and friends have been coming to The Old Spaghetti Factories, located across the United States, to enjoy our delicious food, charming atmosphere and friendly service. We invite you to dine amidst fine antiques, collected from around the world, while savoring perfectly cooked pasta and spaghetti sauces, freshly made, using only the finest ingredients.
|PG&E / 1-800-743-5000 (Customer Service)
Pacific Gas and Electric Company, incorporated in California in 1905, is one of the largest combination natural gas and electric utilities in the United States. Based in San Francisco, the company is a subsidiary of PG&E Corporation.